Abstract
In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: Information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.
| Original language | English |
|---|---|
| Title of host publication | Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering |
| Subtitle of host publication | Software Engineering in Society Track, ICSE-SEIS 2017 |
| Publisher | Institute of Electrical and Electronics Engineers Inc. |
| Pages | 33-36 |
| Number of pages | 4 |
| ISBN (Electronic) | 9781538626733 |
| DOIs | |
| Publication status | Published - 28 Jun 2017 |
| Externally published | Yes |
| Event | 39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 - Buenos Aires, Argentina Duration: 20 May 2017 → 28 May 2017 |
Conference
| Conference | 39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 |
|---|---|
| Country | Argentina |
| City | Buenos Aires |
| Period | 20.5.17 → 28.5.17 |
Fingerprint
Keywords
- Caregiver
- Healthcare
- Nursing Homes
- Pediatric Palliative Care
- Software Requirements
ASJC Scopus subject areas
- Software
- Linguistics and Language
Cite this
Understanding how software can support the needs of family caregivers for patients with severe conditions. / Di Fiore, Angela; Ceschel, Francesco; Fiore, Francesca; Baez, Marcos; Casati, Fabio; Armellin, Giampaolo.
Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017. Institute of Electrical and Electronics Engineers Inc., 2017. p. 33-36 7961665.Research output: Chapter in Book/Report/Conference proceeding › Conference contribution
}
TY - GEN
T1 - Understanding how software can support the needs of family caregivers for patients with severe conditions
AU - Di Fiore, Angela
AU - Ceschel, Francesco
AU - Fiore, Francesca
AU - Baez, Marcos
AU - Casati, Fabio
AU - Armellin, Giampaolo
PY - 2017/6/28
Y1 - 2017/6/28
N2 - In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: Information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.
AB - In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: Information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.
KW - Caregiver
KW - Healthcare
KW - Nursing Homes
KW - Pediatric Palliative Care
KW - Software Requirements
UR - http://www.scopus.com/inward/record.url?scp=85025825529&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85025825529&partnerID=8YFLogxK
U2 - 10.1109/ICSE-SEIS.2017.5
DO - 10.1109/ICSE-SEIS.2017.5
M3 - Conference contribution
SP - 33
EP - 36
BT - Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering
PB - Institute of Electrical and Electronics Engineers Inc.
ER -