Understanding how software can support the needs of family caregivers for patients with severe conditions

Angela Di Fiore, Francesco Ceschel, Francesca Fiore, Marcos Baez, Fabio Casati, Giampaolo Armellin

Research output: Chapter in Book/Report/Conference proceedingConference contribution

3 Citations (Scopus)

Abstract

In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: Information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.

Original languageEnglish
Title of host publicationProceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering
Subtitle of host publicationSoftware Engineering in Society Track, ICSE-SEIS 2017
PublisherInstitute of Electrical and Electronics Engineers Inc.
Pages33-36
Number of pages4
ISBN (Electronic)9781538626733
DOIs
Publication statusPublished - 28 Jun 2017
Externally publishedYes
Event39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 - Buenos Aires, Argentina
Duration: 20 May 201728 May 2017

Conference

Conference39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017
CountryArgentina
CityBuenos Aires
Period20.5.1728.5.17

Keywords

  • Caregiver
  • Healthcare
  • Nursing Homes
  • Pediatric Palliative Care
  • Software Requirements

ASJC Scopus subject areas

  • Software
  • Linguistics and Language

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  • Cite this

    Di Fiore, A., Ceschel, F., Fiore, F., Baez, M., Casati, F., & Armellin, G. (2017). Understanding how software can support the needs of family caregivers for patients with severe conditions. In Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 (pp. 33-36). [7961665] Institute of Electrical and Electronics Engineers Inc.. https://doi.org/10.1109/ICSE-SEIS.2017.5