Understanding how software can support the needs of family caregivers for patients with severe conditions

Abstract

In this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: Information, coordination and social challenges that arise by dealing with such contexts, the existing technology as it is appropriated today to cope with them, and what we, as software researchers, can do to develop the right solutions.

Original language	English
Title of host publication	Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering
Subtitle of host publication	Software Engineering in Society Track, ICSE-SEIS 2017
Publisher	Institute of Electrical and Electronics Engineers Inc.
Pages	33-36
Number of pages	4
ISBN (Electronic)	9781538626733
DOIs	https://doi.org/10.1109/ICSE-SEIS.2017.5
Publication status	Published - 28 Jun 2017
Externally published	Yes
Event	39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 - Buenos Aires, Argentina Duration: 20 May 2017 → 28 May 2017

Conference

Conference	39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017
Country	Argentina
City	Buenos Aires
Period	20.5.17 → 28.5.17

Keywords

Caregiver
Healthcare
Nursing Homes
Pediatric Palliative Care
Software Requirements

ASJC Scopus subject areas

Software
Linguistics and Language

Access to Document

10.1109/ICSE-SEIS.2017.5

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Cite this

Di Fiore, A., Ceschel, F., Fiore, F., Baez, M., Casati, F., & Armellin, G. (2017). Understanding how software can support the needs of family caregivers for patients with severe conditions. In Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017 (pp. 33-36). [7961665] Institute of Electrical and Electronics Engineers Inc.. https://doi.org/10.1109/ICSE-SEIS.2017.5

Understanding how software can support the needs of family caregivers for patients with severe conditions. / Di Fiore, Angela; Ceschel, Francesco; Fiore, Francesca; Baez, Marcos; Casati, Fabio; Armellin, Giampaolo.

Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017. Institute of Electrical and Electronics Engineers Inc., 2017. p. 33-36 7961665.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution

Di Fiore, A, Ceschel, F, Fiore, F, Baez, M, Casati, F & Armellin, G 2017, Understanding how software can support the needs of family caregivers for patients with severe conditions. in Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017., 7961665, Institute of Electrical and Electronics Engineers Inc., pp. 33-36, 39th IEEE/ACM International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017, Buenos Aires, Argentina, 20.5.17. https://doi.org/10.1109/ICSE-SEIS.2017.5

Di Fiore A, Ceschel F, Fiore F, Baez M, Casati F, Armellin G. Understanding how software can support the needs of family caregivers for patients with severe conditions. In Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017. Institute of Electrical and Electronics Engineers Inc. 2017. p. 33-36. 7961665 https://doi.org/10.1109/ICSE-SEIS.2017.5

Di Fiore, Angela ; Ceschel, Francesco ; Fiore, Francesca ; Baez, Marcos ; Casati, Fabio ; Armellin, Giampaolo. / Understanding how software can support the needs of family caregivers for patients with severe conditions. Proceedings - 2017 IEEE/ACM 39th International Conference on Software Engineering: Software Engineering in Society Track, ICSE-SEIS 2017. Institute of Electrical and Electronics Engineers Inc., 2017. pp. 33-36

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